Mitchell: YAHOO!!!

Sunday, August 28, 2011

YAHOO!!!

Post radiation MRI #3

Stable--nothing new and nothing changed= GREAT! That's our goal. We feel very blessed. Of course no matter what we'd feel that way, because we are. Our Father in Heaven cares for each one of us in the exact way we need to be cared for. Whether or not we see that is up to us. I know He loves us and He REALLY loves my Mitchell. I know angels watch over my little guy all the time and I'm just so thankful for every day I get to be wrapped up in his arms.

I love the film "Life is Beautiful." Although it's so heart-wrenching and tragic it is such a good example of staying positive and choosing to be happy no matter what challenges come our way. I'm weak and succumb to fear and anxiety at times, but I try very hard to choose happiness and optimism each day because that is power. I know that our Father in Heaven blesses us too as we choose to see all that is good around us.

Thanks to all! I'm going to continue to hope because isn't it exciting afterall to think of having my little hero defeat the monster? He always tells me he's good at fighting monsters and I believe him.

1 comment:

ronandlindahatfield said...: I believe him too!; August 29, 2011 at 12:58 AM

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Mitchell's Story

Mitchell showed his first symptom April 12, 2010. He was putting his shoes on and looked up at me and I noticed his eyes track in opposite directions. Obviously that sent chills up my spine and I immediately began calling doctors and no one would see him or seemed to think it was a big deal. After it continued a few days and I insisted they see my child, we took him in and our pediatrician agreed something wasn't right. Several doctors later and multiple random diagnoses, we took him to Seattle Children's on April 16th where he was administered an MRI. That scan showed a small tumor that the drs thought was on the brainstem and when I continued to ask the hows/whys they told me not to worry.

I worried all summer long and into the fall until on November 10, 2010 he woke up gagging. I thought he must have the stomach flu and coddled him all day. Around lunchtime it was obvious something serious was wrong because his muscles were shaking and he couldn't walk. We had just had a check-up on November 8 and although we voiced concerns about his eyes drooping, the doctor came up with some strange reason. When we called him about the muscle weakness we were told to go immediately to Seattle Children's. That hour of preparation was one of the worst of our lives. We prayed and cried then left not knowing what awaited us in Seattle. An MRI revealed the tumor had tripled in size. Mitchell's muscle weakness worsened by the minute. In the next couple of days he wouldn't be able to walk at all or lift his left arm. Friday, November 12 he went in for a biopsy to hopefully know what kind of a tumor we were dealing with. Although inconclusive, enough was gathered to diagnose him with a high-grade brainstem glioma.

We began radiation December 6th and finished January 26th during which time he took small doses of temodar--a chemotherapy drug. From February 28th, 2011 until January 23, 2012 he was on a maintenance plan of temodar, irinotecan, and bevacuzimab.

Mitchell's symptoms returned a few months after we finished chemotherapy. They began with severe impulsive behavioral issues that no one could identify a cause for and Mitchell clearly felt bad about. We had some mixed MRI results in May and June, but by then it was clear the tumor was growing. Mitchell declined over the summer but fought hard for his time. He passed away peacefully Sept. 2, 2012 in his daddy's arms. We miss you Mitchell and love you...Always and forever...No matter what!

Mitchell

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Mitchell's 3rd Birthday

Sunday, August 28, 2011

YAHOO!!!

1 comment:

Mitchell's Story

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