Well, we've been home for a week although it feels a lot longer because of how busy life has been. I am FINALLY unpacked--I had to reorganize, so it took much longer. We had family and friends welcome us home in the freezing cold night last week with glow sticks, balloons, and posters. It made me a bit teary-eyed. We are so blessed with such wonderful friends and family who have loved and supported us so well, but especially we are touched by how much everyone has loved Mitchell.
He is doing well. I am a paranoid mess at times looking for any signs of symptoms returning. As our oncologist NP told me, "You'll find it if you look for it." If there is a REAL problem, she said we'd know it for sure. So, I guess on the whole he's doing really well. He is on a steady pathway to healing. His left hand coordination is vastly improved, and I think his walking would be nearly perfect except that he has intense pain from hyperflexing on his left knee. We're waiting for a knee sleeve and brace. His energy levels are good and he is thrilled to be home. My mama is here to help me with the kids since our sweet daddy is full throttle again with work. Mitchell did have a weird day on Tuesday when he drank approx. 75 oz by afternoon. The Drs were concerned he might be showing symptoms from his radiation therapy that damaged part of his pituitary glands. He did not have increased urination, so we hope it was a fluke from kidney stones/dehydration from radiation/etc.
Mostly, it feels so wonderful to look at my sweet angels playing in our family room just as they've always done before, as if nothing in the world was different. I am grateful for what we have and pray that my boys will always be best buddies and each other's confidant and support.
3 comments:
What a great welcome home committee! Hooray for Mitchell and walking too- wow! I am sure it is stressful for always watching for symptoms. Every cry is a jump in your heart for what is wrong.
Yay for cute boys playing in the living room. A huge miracle.
Chad and amy,
Thank you so much for reaching out to us and leaving such encouraging comments on our blog. I have felt your pain and also comfort in reading your blog. I only have access to internet on my phone today but as soon as I am able I will be emailing you for some advice you might have. I also have something I wanted to share with you, too but it's too long to type on my phone. Please know our thoughts and prayers are with your family and your sweet little mitchell. We are all in this together.
--Darcee and Brent Burnett
I finally found your blog so I can keep up on Mitchell! Cannot begin to express how excited I am for you that you are home! I completely understand the walking too - my heart is just overflowing right now for you! I think of you often and continue to pray for complete healing for Mitchell. Keep us updated and ENJOY HOME! - Danae & Jonaven Huck
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