Mitchell: Dec 14, 2010

Tuesday, December 14, 2010

Dec 14, 2010

Bad angle, but cute baby! I am so happy she came to our family. Even on bad days she is there to make us smile and laugh. What a blessing!

Thank you for the faith and prayers! Keep them coming. Mitchell's infection is gone and they're trying to see if he might not need the shunt after all. Great news!!!

Unfortunately poor Jackson got the stomach flu last night, so keeping our fingers crossed that none of the rest of us catch it too. SO grateful my hard working mama is here to take care of us.

1 comment:

Russell and Jillian said...: Just found this blog, Amy. I'm so sorry for your struggles and I'll be sure to keep y'all in our prayers. He looks like a pretty tough kid and you're doing a wonderful job! Keep up your faith. -Jillian (Ruff); December 15, 2010 at 7:31 AM

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Mitchell's Story

Mitchell showed his first symptom April 12, 2010. He was putting his shoes on and looked up at me and I noticed his eyes track in opposite directions. Obviously that sent chills up my spine and I immediately began calling doctors and no one would see him or seemed to think it was a big deal. After it continued a few days and I insisted they see my child, we took him in and our pediatrician agreed something wasn't right. Several doctors later and multiple random diagnoses, we took him to Seattle Children's on April 16th where he was administered an MRI. That scan showed a small tumor that the drs thought was on the brainstem and when I continued to ask the hows/whys they told me not to worry.

I worried all summer long and into the fall until on November 10, 2010 he woke up gagging. I thought he must have the stomach flu and coddled him all day. Around lunchtime it was obvious something serious was wrong because his muscles were shaking and he couldn't walk. We had just had a check-up on November 8 and although we voiced concerns about his eyes drooping, the doctor came up with some strange reason. When we called him about the muscle weakness we were told to go immediately to Seattle Children's. That hour of preparation was one of the worst of our lives. We prayed and cried then left not knowing what awaited us in Seattle. An MRI revealed the tumor had tripled in size. Mitchell's muscle weakness worsened by the minute. In the next couple of days he wouldn't be able to walk at all or lift his left arm. Friday, November 12 he went in for a biopsy to hopefully know what kind of a tumor we were dealing with. Although inconclusive, enough was gathered to diagnose him with a high-grade brainstem glioma.

We began radiation December 6th and finished January 26th during which time he took small doses of temodar--a chemotherapy drug. From February 28th, 2011 until January 23, 2012 he was on a maintenance plan of temodar, irinotecan, and bevacuzimab.

Mitchell's symptoms returned a few months after we finished chemotherapy. They began with severe impulsive behavioral issues that no one could identify a cause for and Mitchell clearly felt bad about. We had some mixed MRI results in May and June, but by then it was clear the tumor was growing. Mitchell declined over the summer but fought hard for his time. He passed away peacefully Sept. 2, 2012 in his daddy's arms. We miss you Mitchell and love you...Always and forever...No matter what!

Mitchell

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Tuesday, December 14, 2010

Dec 14, 2010

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Mitchell's Story

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